Thursday, October 28, 2010

Pediatric Cancer Resources

A list of state-specific and national pediatric cancer resources. These are primarily financial assistance-related, unless otherwise specified. There are many more out there so please comment if you're aware of others.

Adam Bullen Memorial Foundation- children and adults with cancer diagnosis in Massachusetts www.adambullen.com

Alex’s Lemonade Stand- information and resources for all cancer patients, financial assistance for patients at certain hospitals www.alexslemonade.org

Andre Sobel River of Life Foundation- assistance for single mothers of childhood cancer patients at certain hospitals, otherwise may be eligible for Every Day Assistance Fund www.andreriveroflife.org

Angel 34- childhood cancer patients, national www.angel34.org

Angel on my Shoulder- unique assistance, camp, and more for cancer patients in WI www.angelonmyshoulder.org

BASE Camp- pediatric patients with cancer, sickle cell anemia, hemophilia, and other rare/orphan hematological diseases living in Florida, hospital lunches, food and financial assistance, milestone parties www.basecamp.org

Bear Necessities Pediatric Cancer Foundation- childhood cancer patients living in or being treated in Illinois www.bearnecessities.org

Brain Tumor Foundation for Children- brain tumor patients at certain hospitals in the south www.braintumorkids.org

Bryan’s Dream- national, brain tumor patients www.bryansdream.org

Cancer Care- patients with cancer, national www.cancercare.org

Cancer Warriors- critically needy childhood cancer patients in Georgia www.cancerwarriors.org

Chai Lifeline- primarily for Jewish patients with cancer, national www.chailifeline,org

Childhood Leukemia Foundation-information and gifts for pediatric cancer patients (any cancer), national www.clf4kids.org

Children’s Cancer Association- childhood cancer patients in Oregon and SW Washington www.joyrx.org

Children’s Cancer Fund of America- childhood cancer patients, national www.ccfoa.org

Children’s Cancer Fund of New Mexico- childhood cancer patients in New Mexico www.ccfnm.org

Children’s Cancer Recovery Foundation- childhood cancer patients, national www.cancerrecovery.org

Children’s Chance- childhood cancer patients in South Carolina www.childrenschance.org

Clayton Dabney Foundation- terminally ill children, national www.claytondabney.org

Cure for Cancers- cancer patients in northern California www.cureforcancers.org

Embrace Kids- childhood cancer or blood disorder patients in New Jersey www.embracekids.org

First Hand Foundation- childhood cancer patients, national www.firsthandfoundation.org

Foundation for Children with Cancer- childhood cancer patients, national www.childrenwithcancer.org

Friends4Michael Foundation- childhood brain tumor patients, national www.friends4michael.org

Friends of Karen- childhood cancer patients in parts of Connecticut, New Jersey, and New York www.friendsofkaren.org

Godstock- chronically ill children in North Carolina www.godstock.org

Have a Heart Children’s Cancer Charity- childhood cancer patients, certain East Coast hospitals and children’s organizations www.haveaheartcharity.org

Hawaii Children’s Cancer Foundation- childhood cancer patients in Hawaii www.hccf.org

Hope Cancer Fund- cancer patients living in California, Colorado, Kansas, Idaho, Indiana, Iowa, Montana, Michigan, Nebraska, and Wyoming www.hopecancerfund.com

Jacob’s Heart Children’s Cancer Support Services- childhood cancer patients living in these California counties: Santa Cruz, Monterey, San Benito and South Santa Clara www.jacobsheart.org

Jake Owen Raborn Foundation- childhood cancer patients, national www.jakesfoundation.org

Jonathan Cancer Fund- childhood cancer patients living in Onondaga County, New York www.jonathancancerfund.org

Kelly Anne Dolan Memorial Fund- terminally, critically, and chronically ill, severely disabled, or seriously injured children living in Pennsylvania, Delaware, and New Jersey www.dolanfund.org

Locks of Love- hair prostheses for childhood cancer patients, national www.locksoflove.org

Melonhead Foundation- childhood cancer patients, national www.melonhead.org

Michael Magro Foundation- childhood cancer patients at Cancer Center for Kids at Winthrop-University Hospital www.michaelmagrofoundation.com

Michael Quinlan Brain Tumor Foundation- brain tumor patients in Kentucky and southern Indiana, educational materials, support groups and counseling, relaxation therapies, financial assistance with medical expenses www.mqbtf.org

Mikey’s Way- childhood cancer patients, distributes toys and handheld electronics at hospitals in New York www.mikeysway.org

Miracles of Mitch Foundation- childhood cancer patients in Minnesota www.miraclesofmitch.org

Mission4Maureen- brain tumor patients, national www.mission4maureen.com

Mission of Hope Cancer Fund- cancer patients living in Michigan www.cancerfund.org

A Mother’s Kiss- childhood cancer patients in Long Island and Metro-New York www.amotherskiss.org

Multi-County Cancer Support Network- cancer patients living in these Tennessee counties: Franklin, Coffee, Moore, Lincoln, Grundy, Marion, Warren, and Bedfordwww.mccsn.org

National Children’s Cancer Society- childhood cancer patients, national www.nationalchildrenscancersociety.com

Nikki Leach Foundation- cancer patients age 16-25, national www.nikkileach.org

No Wooden Nickels- cancer patients in Illinois (hoping to expand by 2012) www.nowoodennickels.org

Oklahoma Brain Tumor Foundation- brain tumor patients in Oklahoma www.okbtf.org

Padres Contra el Cancer (Parents Against Cancer)- Latino childhood cancer patients in southern California www.iamhope.org

Reflections of Grace- national, brain tumor patients www.reflectionsofgrace.org

Rise Above It Foundation- patients age 15-39 undergoing or pursuing clinical trial options, national www.raibenefit.org

The Sarah Grace Foundation for Children with Cancer- patients in the Pediatric Oncology Departments of Schneider Children's Hospital, Winthrop, Columbia, Montefiore, and Nassau University Medical Center www.thesarahgracefoundation.org

Smiles for Sophie Forever- national, brain tumor patients www.smilesforsophieforever.org

Sparrow Clubs USA- any child with a major illness or significant disability with a compelling practical or financial need, national www.sparrowclubs.org

Szott Foundation- childhood cancer patients in the Twin Cities, Minnesota www.szottfoundation.org

The Tomorrow Fund- childhood cancer patients treated at The Tomorrow Fund Clinic Pediatric Hematology/Oncology Center at Hasbro Children’s Hospital www.tomorrowfund.org

United Cancer Assistance Network- support and assistance to cancer patients residing in southeast Missouri and northeast Arkansas www.ucanpb.com

Wigs for Kids- hair prostheses for low-income childhood cancer patients, national www.wigsforkids.org

Zichron Shlome Refuah Fund- Assists Jewish children or adults with cancer with a variety of assistance, national www.zsrf.org

99 Balloons

A family's experience of Trisomy 18. Very moving...keep the kleenex handy.

Thursday, October 14, 2010

Thoughts

The other day the mother of a patient told me I've done a 1000 times more in my short time there than my predecessor ever did. That made me feel great! But also sad that some of my patients were underserved before.

Tomorrow my work "honeymoon" ends. I have my first day call. My first night call is next Thursday. Thankfully, my first weekend call isn't until January. I told my boss I've really enjoyed not dealing with on-call for the past 5+ months. No keeping my schedule open, no stress, no on-call nerves. It's been beautiful. Still, this is part of the job so I will suck it up and do it. One day and one night call a month and 2 or 3 weekends a year isn't that bad. Is it?

I've been hard at work at compiling a resource list for cancer patients. At first it was only resources my patients can use. Then I realized I was looking up organizations a few times after parents would ask me about them so this list includes everything, all states. If I hear about it, it's going on the list. Once it's done, I'll post a version of it here so be on the look out!

Wednesday, October 06, 2010

Communication Shutdown

I'm so proud of Justin Biehl! I used to babysit him waaaay back in the day. Now he is all grown up and truly making a difference. I can't help but share his message with you all and offer you an opportunity to help.

Facebook and Twitter addicts sign up to Shutdown for one day in support of people with autism

Justin works at Giant Steps, a therapeutic day school for children with Autism in Lisle, IL. They are one of three organizations in the US who have been selected to receive a portion of the funding under this global fundraising campaign. For only $5, you can participate and get your charity app (CHAPP) that serves as a badge of solidarity for those affected by Austism.


• Autism affects approximately 1 in 100 children and is a lifelong condition that impacts every part of a person’s life
• People from all nationalities and cultural, religious and social backgrounds can have autism
• While there is currently no ‘cure’ for autism, there are a number of interventions that promote learning and enable development to occur. The sooner interventions start, the sooner individuals and families can experience the benefits.

Can you get by without Facebook or Twitter, just for one day?

Social communication is one of the biggest challenges for people with autism. But on November 1, the world will have some idea of what this is like.

Today more than 40 autism charities and a team of celebrities worldwide are joining forces to launch a global campaign challenging the world’s 4.5 billion social media users to shutdown their networks just for one day.

The Communication Shutdown campaign encourages Facebook and Twitter users to make a donation and receive a charity app or (CHAPP) that will signal their support and intention to boycott their accounts on November 1.

For a $5 donation, the CHAPP will connect with the user’s Facebook and Twitter accounts by placing a shutdown icon over their profile picture.

From today the Communication Shutdown CHAPP will be available on the campaign website www.communicationshutdown.org. The site will also host a global mosaic where supporters can see their profile pic next to celebrities who have signed up.

Even celebs want to get involved with famous names including Holly Robinson Peete, supermodel Miranda Kerr, and Temple Grandin ready to shutdown.

Get your CHAPP today, then forward this message onto ten people and become part of the largest, global social experiment ever created.

Only $5 to participate and help? I think we can all spare that much. Not only will this directly help children with autism, it will help us understand, to a small degree, their struggle with social communication. I've been blessed to know several people and children with autism and welcome any way I can better understand their world. I have my CHAPP. Do you?

Monday, October 04, 2010

Cancer Bloggers

I've recently come across two bloggers that have recent cancer diagnoses. Both are worth following.

Amy at New Nostalgia is a longtime blogger and disclosed her breast cancer diagnosis a month ago. She writes honestly about her fears and her struggles, but also the blessings, the ways she has seen God at work during this time. She invited her readers to join her CarePage but still posts regularly on her blog. Recently she shaved her hair off. Her reaction, her family's response, and her kids' decorations on her newly shorn head absolutely blew me away. Go visit Amy and leave an encouraging comment.

Libby at Don't Waste Your Cancer is 26 years old, a young mother and wife, and was diagnosed with lymphoma in July. She just grabs your heart! Read her account of her current emotional state. Be inspired by her and her husband's decision to embrace this new path in their relationship. I know I am.